Dear WWW,
Brittney took me to Zupas a couple of weeks ago and I am still thinking about how delectable it was. If you like soups, salads, panini sandwiches, and chocolate covered strawberries you should check it out. I recommend the tomato soup with the ultimate grilled cheese it is comfort food on steroids. Oh no just talking about it is making me hungry.
love ya,
Charlie
Friday, June 25, 2010
Friday, June 18, 2010
Feeling good
Dear World Wide Web,
It has been just over a week since I got the pacer and I am definitely starting to feel better. Also I only have 3 weeks left before I'm aloud to use my left arm normally I am trying to think of a good way to celebrate the that momentous occasion.
Today I got the OK from my doc to bathe again Hallelujah! I have been taking baths anyway but I haven't been able to wash my hair for many a day. I was desperate right after I came home and my Mom took me to her friends salon and we got it washed there.Unfortunately I haven't gotten to wash it since. Yuck.
Thanks for all your prayers and support. I'm lucky I know so many remarkable people.
This is an x-ray they took.... cool right?Charlie
Friday, June 11, 2010
New treatment
Dear World Wide Web,
I have returned to my blog to share with you some news about my dysautonomia treatment. In the last 5 years we have tried every med available, compression stockings, raising the head of my bed, exercise routines, a visit to the mayo clinic, and I gave up candy for a week on the off chance that it might help. We have tried everything except a pacemaker.
My cardiologist has talked about pacemakers before but only as a last resort. We were just talking at my last appointment when out of no where in his thick Korean accent he said "It is time for you to start thinking about a pacemaker and I will schedule it for sometime in the next 2 weeks." I think my jaw dropped.
I have spent the last 2 weeks trying to decide if getting the pacer is the right idea. It only has a 50% chance of helping me. I don't really want a permanent battery stitched into my chest with its wires dangling inside my heart especially if it won't do anything for me. They can't take it out because the heart starts to grow around it. Also any type of surgery can set dysautonomia patients back in their recovery so just deciding to do it is a risk. On the other hand if this can help me improve even a little isn't it worth it?
In the end I decided to do it. It will be implanted June 16th as long as the insurance approves it. I am nervous and I'm still not sure I have decided to do the right thing but I do believe that I will be watched over and everything will turn out as it should.
Charlie
I have returned to my blog to share with you some news about my dysautonomia treatment. In the last 5 years we have tried every med available, compression stockings, raising the head of my bed, exercise routines, a visit to the mayo clinic, and I gave up candy for a week on the off chance that it might help. We have tried everything except a pacemaker.
My cardiologist has talked about pacemakers before but only as a last resort. We were just talking at my last appointment when out of no where in his thick Korean accent he said "It is time for you to start thinking about a pacemaker and I will schedule it for sometime in the next 2 weeks." I think my jaw dropped.
I have spent the last 2 weeks trying to decide if getting the pacer is the right idea. It only has a 50% chance of helping me. I don't really want a permanent battery stitched into my chest with its wires dangling inside my heart especially if it won't do anything for me. They can't take it out because the heart starts to grow around it. Also any type of surgery can set dysautonomia patients back in their recovery so just deciding to do it is a risk. On the other hand if this can help me improve even a little isn't it worth it?
In the end I decided to do it. It will be implanted June 16th as long as the insurance approves it. I am nervous and I'm still not sure I have decided to do the right thing but I do believe that I will be watched over and everything will turn out as it should.
Charlie
Subscribe to:
Posts (Atom)