Cafe Zupas

Dear WWW,

Brittney took me to Zupas a couple of weeks ago and I am still thinking about how delectable it was. If you like soups, salads, panini sandwiches, and chocolate covered strawberries you should check it out. I recommend the tomato soup with the ultimate grilled cheese it is comfort food on steroids. Oh no just talking about it is making me hungry.

love ya,

Charlie

Feeling good

Dear World Wide Web,

It has been just over a week since I got the pacer and I am definitely starting to feel better. Also I only have 3 weeks left before I'm aloud to use my left arm normally I am trying to think of a good way to celebrate the that momentous occasion.

Today I got the OK from my doc to bathe again Hallelujah! I have been taking baths anyway but I haven't been able to wash my hair for many a day. I was desperate right after I came home and my Mom took me to her friends salon and we got it washed there.Unfortunately I haven't gotten to wash it since. Yuck.

Thanks for all your prayers and support. I'm lucky I know so many remarkable people.

This is an x-ray they took.... cool right?

Charlie

New treatment

Dear World Wide Web,

I have returned to my blog to share with you some news about my dysautonomia treatment. In the last 5 years we have tried every med available, compression stockings, raising the head of my bed, exercise routines, a visit to the mayo clinic, and I gave up candy for a week on the off chance that it might help. We have tried everything except a pacemaker.

My cardiologist has talked about pacemakers before but only as a last resort. We were just talking at my last appointment when out of no where in his thick Korean accent he said "It is time for you to start thinking about a pacemaker and I will schedule it for sometime in the next 2 weeks." I think my jaw dropped.

I have spent the last 2 weeks trying to decide if getting the pacer is the right idea. It only has a 50% chance of helping me. I don't really want a permanent battery stitched into my chest with its wires dangling inside my heart especially if it won't do anything for me. They can't take it out because the heart starts to grow around it. Also any type of surgery can set dysautonomia patients back in their recovery so just deciding to do it is a risk. On the other hand if this can help me improve even a little isn't it worth it?

In the end I decided to do it. It will be implanted June 16th as long as the insurance approves it. I am nervous and I'm still not sure I have decided to do the right thing but I do believe that I will be watched over and everything will turn out as it should.

Charlie

Aggie Basketball

I invited Brittney to come up this weekend to go and see the last Aggie home game. I had not been to a whole game yet and thought Brittney would feel at home in the enthusiastic crowd. We were both pretty excited to go.

See how very excited we look.

When we got there we realized we were sitting in a figurative ocean of aggie blue and both of us had on maroon. We joked about how funny it would be if the team came out and their color was red. We thought we were SO funny until New Mexico made their appearance.

D'OH!
Simultaneously we started to roll up our sleeves (isn't it funny how sisters think so similarly sometimes.) in an attempt to look like were were not wearing red. We got pretty nervous Aggie fans are not known for how kind they are to opposing teams.

See how very nervous we look

Don't worry they didn't hurt us. But wow they are hard core meanies.

We were both very tired and decided that we would just go at half time. I thought there were 4 quarters in a game and that we could go after the second one. Brittney and I watched the scoreboard and decided we would be ready to go as soon the "second period" was finished. The periods seemed to last forever. Finally it was winding down to the last seconds so we started to gather our things to leave. When to our surprise the crowd flooded the basketball court. "The game is over?" I exclaimed. We had thought periods, and quarters were the same thing and had ACCIDENTALLY stayed the whole game. How do you accidentally stay a whole game?

I guess basketball is not really our thing!

A Tribute to Josh

Who put the skull on my wheelchair? Josh!

Who put a GIANT valentines day heart on the wall just for me? Josh!

Who sends me funny quotes once a day? Josh!

Who bought me a delicious apple snapple....Dom. But I am sure Josh was thinking he should buy me one.

Who always carries all my stuff into the house when I come home? Josh!

Who laughs at most of my jokes? Josh!

All the good, the bad, the twitchy.

Hey Josh thanks for all you do for me. Love you!

Shark attack

Last night I had a dream, and in it I was sitting on a beach making a list of things that might be blog worthy. All of a sudden a SHARK jumped out of the water and bit my leg. I screamed until it let go then I examined the wound and said, "Yeah that is blog worthy."

Sorry for my neglect. Hope you are all well.

I learned in college...

I learned in college that….

The moment you decide you need to buy a plunger it is probably too late.
If you want clean clothes then you have to hoard quarters
You will go to class and find out you know nothing, then you pass the class and feel smarter until you start a new class and find out you still know nothing.
An emergency chocolate supply is not a “if I can fit into the grocery budget” kinda thing
Your whites and colors can to mix in the washing machine… most of the time (I learned this from the school news paper)
I can live without youtube and TV (cringe) I really can
Strangely themed parties and dances are a requirement example: starch dance
You get a free drink at Costa Vida with a student ID (SWEET)
You can sneak almost any food stuff into a movie theater. Including ice cream…just don’t forget spoons
You can buy sleeping and pep pills in the vending machines
That there are not instruction on the back of the refried beans can to tell you how to cook it them
That bad potatoes smell worse than cadaver lab
Turn the quiz paper over to look for questions on the back before you turn it in.
You may have to call you teacher Dr. so and so, but they still won’t know what to do when you pass out
That memorizing a Simpson’s episode takes me a half hour but memorizing historical facts takes me a week.
You can add fillers/nonsense words into your reference/bibliography list at the end of papers because no one really reads them.
If you wait to print something at the last minute then that is when the printer will stop working
It doesn’t matter what time of year it is something in your apartment is going to be decorated with Christmas lights
That your room will get so cold that icicles form on the blinds
That church business in a young adult ward is usually handled through text messaging
Not locking your door is the same as inviting the neighbors over.
That every-year I will have to replace half my kitchen things because somehow when your roommate moved out early half of it disappeared
By the time I get a bachalors degree I could have taken a two week tour of Europe with the money I spent on text books that most people don’t read
That most people don’t read the text book and that is why I am so dang slow at homework
Walkers are considered a fire hazard and will be moved so that the rest of the auditorium can get out saftely.

It is very exciting when you get a nice click-y pen or a cute colored notebook
If you use toothpaste to fill nail holes make sure that it doesn’t smell like mint or the seasoned landlord will know.
An anatomy/physiology class is more like a foreign language class
Sometimes you just have to go to the bathroom at school because you know there won’t be toilet paper at home
That as soon as you get brave enough to flirt with a guy you will probably find out he is married
When your cell phone rings in class it will take you 3 minutes to find it and one minute to get it to stop
If you want to kiss a stranger the school holds a party to accommodate you.
That you won’t die if you pass out and fall down old main hill….the trees will break your fall.
That packages from home will make your day even if your only two hours away
You shouldn't worry at the end of the year you will find all the food that you lost in the fridge…yuck